if and celiac disease…

A good friend of mine was diagnosed with celiac disease about a year and a half ago.  If you’ve never heard of it, I suggest clicking this link to read about it on WebMD.  A brief description of what it is: “Celiac disease is a digestive disorder characterized by intolerance to dietary gluten, which is a protein found in wheat, rye, and barley. Consumption of gluten leads to abnormal changes of the mucous membrane (mucosa) of the small intestine, impairing its ability to properly absorb fats and additional nutrients during digestion (intestinal malabsorption).”

It is a very serious disease and the only “cure” is to completely cut out all gluten from your diet.  As you may imagine, this severely limits ones food choices.  Although, a lot of G-free foods are very tasty!  I’ve had a lot since she was diagnosed and made many myself.  When it’s a matter of life or death (which it is for her…if she has gluten it could kill her) you find ways!

Why am I bringing this up here?  Well the very lovely and talented Stirrup Queen posted a link on her Twitter to this article linking celiac disease with infertility.  Celiac disease blocks your body for absorbing nutrients (such as Vitamin D, calcium and Folic Acid…seem important?), there by causing fertility issues and recurrent miscarriages.  The article points to a blogger, Waiting in Sunshine and her post about her celiac’s and infertility.

I think this is an important issue to look into for those of us still in the trenches.  In April I go in for some big blood work to see if there is any reason I continue to loose my babies.  The PCOS explains my difficulty getting pregnant (though with metformin now, we seem to have helped that problem out a lot) but now we’re looking into why I can’t stay pregnant.  The MFM doc I saw didn’t see any reason in my ultrasound and past testing to explain it.  What if all my tests come back okay?  What then?  I don’t think I have any of the celiac symptoms, but the blood test is so easy to check for it, and I know there are clinics that offer free testing for it all the time.  It would be something to look into if there is no other explanation.  I’m not putting this up here to make everyone think that there IF/miscarriage issues are caused by celiac disease.  I’m just saying it’s certainly something to consider if all else fails.

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Um, wow…

Some of you may remember that June 25th was RESOLVE‘s Advocacy Day in Washington DC.  I couldn’t be there myself, but I did all I could here.  I posted a blog, I put up twitter posts all day about it, and “donated” my facebook status.  I even wrote to all the senators and representatives that speak for me in DC as an Illinois resident.  I only heard back from 2 of them, but I felt good that I had done something here.

Well, I was looking at my blog stats today and it shows you where people who have read your blog come from and there was a weird link that I didn’t recognize so I click on it and it took me here.

I don’t really know much about “Blog Her” but I’ve been meaning to find out more about it, and now I’m in one of the articles!  If you scroll down to the bottom of the article this blog is mentioned and is quoted!!!  I can’t believe it…it’s pretty crazy that something I said would be quoted by anyone!  Let alone the Stirrup Queen herself!

I hope that what I said and what RESOLVE was able to do in DC will help us all to reach our goals with less stress and less worry about money.  It’s hard enough to go through all we do with infertility without the added stress and pain of having to pay for it all without the help of insurance.

National Infertility Awareness Week…

I didn’t even know this existed, and now I find it’s this week!  Thanks to Tara for putting this on her site…that’s where I found it.  I’m new to this whole IF blogging thing…so thank you to all of those that I follow in guiding me along the way, even th0ugh you may not know that you are!

niaw

National Infertility Awareness Week is a movement to raise awareness about the disease of infertility which affects 7.3 million Americans.

So…RESOLVE.org is where I got the info about NIAW 2009.  “RESOLVE.org is a community for women and men with infertility and provides information, support and opportunities to take action.”  Like I said – I’m new to all this, so I can’t give you much more info.  I’ve just discovered the website and I’m really hoping it’s helpful.  Check it out.   Also, spread the word on NIAW.  I’ve just recently come to the realization that I need to let people know what I’ve been struggling with the past 2 years.  Up until my miscarriage, there were a very select few who knew 1) that we were even trying to have a baby and 2) that because of PCOS, it was not going well.  After I lost my child, I felt that one way of coping with the loss and infertility was to finally share with the world the struggle I’ve been living with.  It was hard.  I cried as I was sharing the news with those I love the most, let alone with complete strangers!  I still feel shame about my infertility, and it’s difficult to have this blog and put it all out there for the world to see, but I also know it’s something I need to do or I will go insane.  Please – if you you feel comfortable, pass on the news about this awareness week, and share something of your own struggle!

Also, from Stirrup Queens, I’ve discovered the pomegranate thread that those of us living with infertility are to wear to identify one another.  I’ve recently gotten the correct thread and tied it on my wrist.  Here is the write up direct from Stirrup Queens explaining all of this:

“For anyone who has ever had a miscarriage, struggled with pregnancy, and all things infertile…there is a movement upon us that you might want to join. It’s rather simple actually: a discreet ribbon on your right wrist to signal to others that they are not alone in their struggles.

“As someone who has had 5 m/c but am currently 5 months pregnant (YEAH), I wonder who looks at my big belly with sadness because they are in the month-to-month struggle. I mentioned to a friend that I wished there was some secret nod or international sign as if to say, this belly was hardwon. Well, she posted this quandary on her blog (http://www.stirrup-queens.blogspot.com/) and the response has been quite overwhelming…and a movement has been born!

“The pomegranate-colored thread holds a two-fold purpose: to identify and create community between those experiencing infertility as well as create a starting point for a conversation. Women pregnant through any means, natural or A.R.T., families created through adoption or surrogacy, or couples trying to conceive during infertility or secondary infertility can wear the thread, identifying themselves to others in this silent community. At the same time, the string serves as a gateway to conversations about infertility when people inquire about its purpose. These conversations are imperative if we are ever to remove the social stigma attached to infertility.Tie on the thread because you’re not alone. Wear to make aware. Join us in starting this conversation about infertility by purchasingthis pomegranate-coloured thread (#814 by DMC) at any craft, knitting, or variety store such as Walmart or Target. Tie it on your right wrist. Notice it on others. Just thought I would pass the word along!”